Nikki Lilly, a British charity campaigner, YouTuber, author, and television presenter, continues to be active and influential as of 2025. She is known for living with a rare medical condition called arteriovenous malformation (AVM), which has required numerous surgeries. Nikki started her YouTube channel at age eight to share her experiences and has since become a prominent advocate for disability rights, cyberbullying awareness, and positive representation of people with visible differences. As of recent updates in 2025, Nikki Lilly has:
- Spoken at the United Nations Human Rights Council on disability rights.
- Participated in artistic exhibitions highlighting facial differences.
- Continued her advocacy through social media and public appearances.
- Published a book about living life as a teen with her condition.
- Attended prestigious events such as the Cannes Festival.
- Grown her platform with nearly 3 million subscribers on YouTube.
She remains a positive role model, raising awareness about AVM and the challenges faced by people with visible differences, while promoting inclusion and self-acceptance. Nikki has managed her health condition with significant resilience and uses her public profile to support others facing similar challenges. Nikki Lilly is very much present and active in her work and advocacy in 2025.
